Analysis of Patient Rights Protection through Medical Record Confidentiality and Information Disclosure System in Indonesian Hospitals

Ns. I Komang Upadana Putra; Tuty   Kuswardhani; Sagung Putri M.E   Purwani

doi:10.37899/journal-la-sociale.v5i2.1141

Ns. I Komang Upadana Putra Postgraduate Program, Udayana University
Tuty Kuswardhani Postgraduate Program, Udayana University
Sagung Putri M.E Purwani Postgraduate Program, Udayana University

DOI: https://doi.org/10.37899/journal-la-sociale.v5i2.1141

Keywords: Confidentiality, Information Disclosure, Medical Records, Patient Rights Protection

Abstract

This study presents an in-depth analysis of patient rights protection, focusing on medical record confidentiality and the information disclosure system in Indonesian hospitals. The research utilizes a normative juridical approach, employing primary and secondary legal materials and combining statute and conceptual approaches. The analysis highlights gaps in the existing legal and policy frameworks that compromise patient rights, and the challenges healthcare providers face in maintaining medical record confidentiality and disclosure of information. These issues are further illuminated through a review of relevant academic literature, and corroborated by empirical evidence drawn from real-world case studies. Findings reveal a dichotomy between theoretical principles of patient rights and their practical implementation, accentuated by resource limitations, variations in law enforcement, and gaps in understanding among healthcare providers. The study concludes with recommendations for legal and policy reforms that can bridge these gaps, improve patient care, and strengthen trust in Indonesia's healthcare system. These reforms present both challenges and opportunities. While resource constraints and resistance to change may pose difficulties, the potential for improved patient care, enhanced public trust, and socio-economic development makes the pursuit of these reforms a necessary endeavour. This study contributes to a deeper understanding of patient rights protection and sets the stage for ongoing dialogue and action towards healthcare reform in Indonesia.

References

Adhalia, C. K. (2023). Batasan Kewenangan Klinis Dan Praktik Kedokteran Melalui Telemedicine Berbasis Aplikasi (Tesis) Oleh Chandrika Karisa Adhalia.

Agustina, R., Dartanto, T., Sitompul, R., Susiloretni, K. A., Achadi, E. L., Taher, A., ... & Khusun, H. (2019). Universal health coverage in Indonesia: concept, progress, and challenges. The Lancet, 393(10166), 75-102. https://doi.org/10.1016/S0140-6736(18)31647-7

Alberton Coutinho Silva, C. (2021). The fundamental right of confidentiality and integrity of IT systems in Germany: a call for “IT Privacy” right in Brazil? International Cybersecurity Law Review, 2(2), 253–269. https://doi.org/10.1365/s43439-021-00037-4

Ashfaque, M. F. (2020). Adoption Of The Health Information Exchange (Hie) System And The Role Of The Healthcare Leadership.

Asmaningrum, N., Kurniawati, D., & Tsai, Y. F. (2020). Threats to patient dignity in clinical care settings: A qualitative comparison of Indonesian nurses and patients. Journal of Clinical Nursing, 29(5-6), 899-908.

Benuf, K., Mahmudah, S., & Priyono, E. A. (2019). Perlindungan Hukum Terhadap Keamanan Data Konsumen Financial Technology Di Indonesia. Refleksi Hukum: Jurnal Ilmu Hukum, 3(2), 145–160. https://doi.org/10.24246/jrh.2019.v3.i2.p145-160

Christiani, T. A. (2016). Normative and Empirical Research Methods: Their Usefulness and Relevance in the Study of Law as an Object. Procedia - Social and Behavioral Sciences, 219, 201–207. https://doi.org/10.1016/j.sbspro.2016.05.006

Davis, T. C., Williams, M. V., Marin, E., Parker, R. M., & Glass, J. (2002). Health Literacy and Cancer Communication. CA: A Cancer Journal for Clinicians, 52(3), 134–149. https://doi.org/10.3322/canjclin.52.3.134

Driever, E. M., Tolhuizen, I. M., Duvivier, R. J., Stiggelbout, A. M., & Brand, P. L. P. (2022). Why do medical residents prefer paternalistic decision making? An interview study. BMC Medical Education, 22(1). https://doi.org/10.1186/s12909-022-03203-2

Elnaiem, A., Mohamed-Ahmed, O., Zumla, A., Mecaskey, J., Charron, N., Abakar, M. F., ... & Dar, O. (2023). Global and regional governance of One Health and implications for global health security. The Lancet, 401(10377), 688-704. https://doi.org/10.1016/S0140-6736(22)01597-5

Harzheim, J. A. (2023). The role of Patient Autonomy and Informed Consent for equal access to healthcare: A conceptual inquiry of contemporary bioethical debate. In Equal Access to Healthcare in Socially Diverse Societies (pp. 27–58). Verlag Karl Alber. https://doi.org/10.5771/9783495997895-27

Jenie, I., & Yuni Lestari, A. (2019). Philosophical Basis of Informed Consent, Informed Refusal and Documentation of Medical Information into Medical Record. Jurnal Media Hukum, 26(1). https://doi.org/10.18196/jmh.20190123

Jusuf, E. C., Kumala, R., & Adriano, A. (2023). Tinjauan Hukum Kerahasiaan Rekam Medis dalam Laporan Kesehatan Ibu dan Anak Berbasis Digital. Wajah Hukum, 7(1), 23. https://doi.org/10.33087/wjh.v7i1.1012

K Pool, J., Akhlaghpour, S., Fatehi, F., & Burton-Jones, A. (2019). Causes and impacts of personal health information (PHI) breaches: a scoping review and thematic analysis. In Twenty-Third pacific Asia conference on information systems, China July.

Keshta, I., & Odeh, A. (2021). Security and privacy of electronic health records: Concerns and challenges. In Egyptian Informatics Journal (Vol. 22, Issue 2, pp. 177–183). Elsevier B.V. https://doi.org/10.1016/j.eij.2020.07.003

Lee, J. K., Chang, Y., Kwon, H. Y., & Kim, B. (2020). Reconciliation of Privacy with Preventive Cybersecurity: The Bright Internet Approach. Information Systems Frontiers, 22(1), 45–57. https://doi.org/10.1007/s10796-020-09984-5

Lestari, R. D. (2021). Perlindungan Hukum bagi Pasien dalam Telemedicine. Jurnal Cakrawala Informasi, 1(2), 51–65. https://doi.org/10.54066/jci.v1i2.150

Li Member, M., Yu, S., Zheng, Y., Member, S., Ren, K., Member, S., & Lou, W. (2012). Scalable and Secure Sharing of Personal Health Records in Cloud Computing using Attribute-based Encryption. In Ieee Transactions On Parallel And Distributed Systems: Vol. XX. http://www.healthvault.com/

Masri, E. (2022). Rahasia Kedokteran dan Perlindungan Hukum Pasien Covid 19. 8(2), 265–274. https://doi.org/10.59999/v8i2.1483

Nass, S. J., Levit, L. A., Gostin, L. O. (Lawrence O., & Institute of Medicine (U.S.). Committee on Health Research and the Privacy of Health Information, the H. P. Rule. (2009). Beyond the HIPAA privacy rule: enhancing privacy, improving health through research. National Academies Press.

Nisak, U. K. (2021). Pengantar Rekam Medis dan Manajemen Informasi Kesehatan. umikhoirun.

Raissa, A., & Afifah, W. (2021). Publikasi Data Pasien Covid-19 Ditinjau Dari Undang-undang Nomor 36 Tahun 2009 Tentang Kesehatan. COURT REVIEW: Jurnal Penelitian Hukum (e-ISSN: 2776-1916), 1(1), 13-29.

Riadi, I., Ahmad, T., Sarno, R., Purwono, P., & Ma’arif, A. (2020). Developing Data Integrity in an Electronic Health Record System using Blockchain and InterPlanetary File System (Case Study: COVID-19 Data). Emerging Science Journal, 4(Special issue), 190–206. https://doi.org/10.28991/esj-2021-SP1-013

Rosmaini, E., Kusumasari, T. F., Lubis, M., & Lubis, A. R. (2018). Insights to develop privacy policy for organization in Indonesia. Journal of Physics: Conference Series, 978(1). https://doi.org/10.1088/1742-6596/978/1/012042

Scott, I. A., Shaw, T., Slade, C., Wan, T. T., Coorey, C., Johnson, S. L. J., & Sullivan, C. M. (2023). Digital health competencies for the next generation of physicians. Internal Medicine Journal. https://doi.org/10.1111/imj.16122

Semantha, F. H., Azam, S., Yeo, K. C., & Shanmugam, B. (2020). A systematic literature review on privacy by design in the healthcare sector. In Electronics (Switzerland) (Vol. 9, Issue 3). MDPI AG. https://doi.org/10.3390/electronics9030452

Setiawati, D., Hakim, H. A., & Yoga, F. A. H. (2020). Optimizing Personal Data Protection in Indonesia: Lesson Learned from China, South Korea, and Singapore. Indonesian Comparative Law Review, 2(2). https://doi.org/10.18196/iclr.2219

Shalahuddin, A. T., & Yunita, A. (2022). Legal Protection Of Illegal Online Loan Users (Research By The Yogyakarta Regional Financial Services Authority). Jch (Jurnal Cendekia Hukum), 8(1), 118-138) https://doi.org/10.3376/jch.v8i1.583

Shea, M. (2020). Forty years of the four principles: Enduring themes from beauchamp and childress. Journal of Medicine and Philosophy (United Kingdom), 45(4–5), 387–395. https://doi.org/10.1093/jmp/jhaa020

Sugiarti, I., Iii, P. D., Poltekkes, R., & Tasikmalaya, K. (2020). Legal Protection of Patient Rights to Completeness and Confidentiality in Management of Medical Record Documents.

Surmiak, A. (2020). Should we Maintain or Break Confidentiality? The Choices Made by Social Researchers in the Context of Law Violation and Harm. Journal of Academic Ethics, 18(3), 229–247. https://doi.org/10.1007/s10805-019-09336-2

Tarigan, S. F. N., & Maksum, T. S. (2022). Pemanfaatan layanan sistem informasi e-puskesmas dengan menggunakan metode PIECES. Jambura Health and Sport Journal, 4(1), 29-36. https://doi.org/10.37311/jhsj.v4i1.13446

Wahyuni, C. I. D., Laskarwati, B., & Al Qulub, N. M. (2020). Informed Consent in Health Services: How are the Patients' Rights Protected?. Journal of Law and Legal Reform, 1(4), 591-604. https://doi.org/10.15294/jllr.v1i4.39891

Warijan, W., Widodo, W., & Nur’afifah, M. M. (2019). Tinjauan Pelaksanaan Pelepasan Informasi Medis. Jurnal Rekam Medis Dan Informasi Kesehatan, 2(1), 20. https://doi.org/10.31983/jrmik.v2i1.4398